This position is charged with the responsibility of developing, coordinating, managing and evaluating the activities of the Epilepsy Leadership Council and supporting its Board of Directors. Additional responsibilities include facilitating and supporting collaborations across the patient advocacy and epilepsy professional communities, working closely with the Executive office of the Society and program teams. Activities may encompass education, research, practice and advocacy programs.
Provide staff leadership to the ELC Board and its work groups in developing and executing strategic programs in support of the ELC Charter, including work groups on advocacy, research and public awareness.
Under direction of the ELC Board, and collaboratively with AES executive and development staff, develop funding plan to support activities of the ELC.
Develop and manage ELC membership policies and processes.
Develop and manage dues process, working closely with AES member services on execution within AES database system.
Manage ELC website, social media and other public communication on behalf of ELC.
Work with the ELC Board to develop agenda and program content for ELC annual meeting.
Provides staff support to the Board of Directors of the ELC and its work groups, including developing agendas and supporting materials, organizing conference calls and meetings, and providing summations and other timely communication on project status.
Develops and manages the budget for ELC, under the administrative authority of the American Epilepsy Society.
Serve as ELC staff representative, independently or in conjunction with member organization representatives, to external organizations including NINDS (ICARE, Curing Epilepsy Conference, Nonprofit Forum)
Manage the planning and execution of the annual Hoyer Lecture, working closely with NINDS, Epilepsy Foundation, ELC member organizations and AES as host organization.
Serves as managing staff on special programs, primarily those which involve significant collaborative components with patient advocacy or other broader epilepsy community engagement. Examples have included activities related to the Partners Against Mortality in Epilepsy (PAME) collaborative, education partnerships through the National Epilepsy Education and Awareness Collaborative, the Managing Epilepsy Well Network.
Provide strategic input as a member of the senior staff team on other collaborative opportunities across the patient advocacy and epilepsy professional communities.
Other responsibilities as required.
Bachelor’s Degree required. Advanced degree such as an MPH or related desirable.
Minimum seven years’ experience in patient advocacy, medical professional, or related organization.
Experience in advocacy, education programming, and/or meetings management, highly desirable.
Experience and/or demonstrated skills in developing and supporting collaborative, multi-organizational partnerships to execute on joint initiatives.
Excellent program and project management skills and the ability to balance multiple priorities.
Strong problem-solving and decision-making skills.
Knowledge of epilepsy and epilepsy community desirable.
Experience with program management and developing and managing program budgets.
Strong oral and written communication skills.
Ability to work both independently and within a team structure.
Strong experience with Windows Operating Systems, Microsoft. applications, DropBox or other shared file systems, and web conferencing
Some travel is required.
The vision of the American Epilepsy Society is to eradicate epilepsy and its consequences.
The mission of the American Epilepsy Society is to advance research and education for professionals dedicated to the prevention, treatment and cure of epilepsy.
We are dedicated to improving the lives of people with epilepsy.
We embrace innovation and strive for excellence in everything we do.
We are an inclusive, collegial community, which enriches the experiences of all involved.
We value collaborating with other organizations that are aligned with our mission to achieve higher results
AES is an Equal Employment Opportunity employer. Equal Employment Opportunity is a fundamental principle of the American Epilepsy Society, where employment is based upon personal capabilities and qualifications without discrimination based on race, color, sexual orientation, gender identity, religion, sex, age, national origin, military history, disability, genetic information or any other protected status. This policy of Equal Employment Opportunity applies to all policies and procedures relation to recruitment, and hiring, compensation, benefits, termination and all other terms and conditions of employment. The American Epilepsy Society prohibits employee conduct that results in discrimination. Each manager and supervisor is responsible for implementing and supporting this policy. Anyone who violates another’s rights in any of these areas is subject to dismissal. Discrimination is not tolerated in any form by AES and appropriate disciplinary action may be taken against any employee violating this policy.
About American Epilepsy Society
The American Epilepsy Society (AES) is one of the oldest neurological professional organizations in the country. The mission of AES is to advance research and education for professionals dedicated to the prevention, treatment and cure of epilepsy. The Society promotes interdisciplinary communications, scientific investigation and exchange of clinical information about epilepsy. With a membership of more than 4,300 AES represents clinicians, scientists investigating basic and clinical aspects of epilepsy, and other professionals interested in epilepsy, seizures and related disorders. Members represent both pediatric and adult aspects of epilepsy.
AES is located in downtown Chicago, has a staff of 21 with an operating budget of $8.6M.